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筋萎縮性側索硬化症 (ALS) 患者

Hiro Fujita
Planning Director at McCann Erickson
ALS Patient (a.k.a. Lou Gehrig’s disease)
I am not a creator or an entertainer that people may know. However, I do have a few things to share through my fight against ALS. This has been a devastating yet invaluable experience. I grew up as an expat’s child in Europe, U.S., and Japan; I was an all star athlete in soccer, football and track; I work with the most talented and caring group of professionals at the biggest advertising agency; I am surrounded by hundreds of loving family and friends; I drank and partied like a rock star; But I have never truly realized or appreciated what I had been blessed with until I encountered ALS. Every value I have had has changed. I hope I can share some of this with you and inspire any kind of action to eliminate similar injustices.  Let’s go.


Facebook: http://www.facebook.com/people/Hiro-Fujita/826240262
Email: hirofujita.als@gmail.com

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it's all good

April 11, 2015

i often get asked "how's life?"

should i answer with the rawness? or just with what i always say ... it's all good.
should i/we throw the negative reality at you ? do you REALLY want to feel it every time?
the tears filled of shame from waking up to diarrhea all splattered in my boxers and not being able to do a damn thing about it, but wait, to be wiped down?
the frustration of not being able to communicate what i want/ need to my caregivers or family?
the fact that how people around feel or are fatigued that day, DIRECTLY affects my day?
and again, not being able to do a damn thing about it?
the heart ripping rage inside from not getting my opinions heard or from feeling so damn helpless in this world
or maybe the sorrows of imagining "what could have been"?
or the loneliness of watching everybody do things i envy... so much... ?

... naaahh... it's all good... i'll keep it in, to keep you close ...

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look at my hole 見て、穴がでかーい。

March 23, 2015

every 2 weeks, doc comes to change my tracheotomy tube thingy in my throat.
don't let my non-expressive facials fool you.
although doc is quick and good, it's pretty painful.
just another day... can't believe it's been 2 years already since i got this collar ...


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うつ depressed

March 20, 2015


i was told by doc if i am to take more anxiety pills he'll have to put me on antidepressants...
wha? me? depressed? hell no... am i depressed?
oh well, what difference does it make now.
ya? haha

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picture by masako

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