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藤田正裕

1979年東京生まれ。
マッキャンエリクソン、プランニングディレクター
筋萎縮性側索硬化症 (ALS) 患者
2010年11月に難病診断を受け、現在は自宅から仕事を続けている。
難病ALSの認知を高めるため、自らの体験を自らの言葉でシェアしていきたい。

Hiro Fujita
Planning Director at McCann Erickson
ALS Patient (a.k.a. Lou Gehrig’s disease)
I am not a creator or an entertainer that people may know. However, I do have a few things to share through my fight against ALS. This has been a devastating yet invaluable experience. I grew up as an expat’s child in Europe, U.S., and Japan; I was an all star athlete in soccer, football and track; I work with the most talented and caring group of professionals at the biggest advertising agency; I am surrounded by hundreds of loving family and friends; I drank and partied like a rock star; But I have never truly realized or appreciated what I had been blessed with until I encountered ALS. Every value I have had has changed. I hope I can share some of this with you and inspire any kind of action to eliminate similar injustices.  Let’s go.

http://end-als.com/

Facebook: http://www.facebook.com/people/Hiro-Fujita/826240262
Email: hirofujita.als@gmail.com

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a couple high school buddies 高校仲間

October 14, 2014

two married couples plus one came over last month.
didn't think about it but they are all friends from high school.

jon, 1 above, on the left was captain of the football and wrestling teams.
a crazy mofo who used to enjoy bar fights w/marines as a high schooler.
now, he practices jujitsu and law in ny so he can beat your ass legally.
he got "end als" on his gi in the spirit of "keep fighting". yessurr.

guy on the right, kak, 2 above, isn't a fighter, he's a lover.
but watch what you say, he'll talk the shit out of you endlessly.
he always brought over my favorite, mcdonalds when i could still eat... daaaammit
hes also a sore loser when it comes to call of duty :) ... if i could play, als wouldn't be as bad... escaping to an avatar world...

and the beautiful ladies kazu, 2 below & ema, 2 above, keep the 2 bullies in check.
all high school love

先月結婚してるカップルが2組+1匹が遊びに来た。
深く考えていなかったが4人とも同じ高校の仲間だった。

左のジョンは1コ上。当時アメフトとレスリング部のキャプテン。
高校生ながら六本木で米海軍と喧嘩を楽しむような変態。
今はニューヨークで柔術を学びながらの弁護士。合法な殺し屋を目指してるのだろうか、、、
道着にEND ALSと入れてくれた。戦い続ける精神を込めてだという。イエッサー。

右のカツは2コ上。喧嘩はしない愛の戦士。
しかーし、議論となったら、一生止まらない。
まだ食べれてた時はいつも大好物のマックを持ってきて食べさせてくれた、、、よだれが、、、
コールオブデューティーもよく対戦したが彼は負けず嫌いで、、、けどなーあのゲームさえ遊べたらベッド生活も悪くないかも、、、アバターの世界に入り込める感じ、、、

そして真ん中の女子二人が彼らを転がすスゴ腕。
すべて高校時代の仲間。

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END ALS NYC is running!

October 10, 2014

END ALSのニューヨークチームがセントラルパークに集まり治療薬を想いに走ります。
近くにいる方は下記の情報を是非ご覧ください。

END ALS RUN IN NEW YORK!

DATE: SATURDAY OCTOBER 18, 2014!!!!

TIME: We are establishing 3 start times for all those who wish to participate in the run, walk, hop, skip, jog, etc around the Central Park loop: 10AM, 10:30AM and 11AM
To participate in GORON for ALS, please arrive by 9:30AM (What the HECK is GORON??)

For Donation Link, Location Map and many more details, please visit:
http://www.endalsnyc2.myevent.com/

ENDALSNYC HAPPY HOUR!!!
END ALS NYC will be hosting a happy hour after the run/walk/hang out/skip/jog on Saturday October 18 approximately 4-5PM. More details to come, look out for 'em!!
TEAM END ALS NYC

Please contact anybody from the below for more info:
Emily Kidder: emily.kidder@gmail.com
Jen Demura: jendemura@gmail.com
Cynthia Minakawa: cminakawa@gmail.com
Christl Kagiyama: christl13@gmail.com
Justin Clemons: sarujump@gmail.com

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goodnight ritual. おやすみ儀式。

October 7, 2014

every night,
before turning the tv, lights, computer off and get positioned for sleep, i have a ritual.
its to calm down, ease the mind, and start a good warm dream.
i have a playlist that i listen to even if its for a minute.
my "anxiety pill" i guess.
here are a few. dont hate :)
sweet dreeaams

毎晩
テレビ、電気、パソコンを消して寝る体勢になる前に、必ず行う儀式がある。
心を落ち着かせ、脳を静め、いい夢を見るため。
一分でもいいから聴くプレイリスト。
寝る前の精神安定剤。
何曲か紹介。
いい夢をー。

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photo by ross

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