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藤田正裕

1979年東京生まれ。
マッキャンエリクソン、プランニングディレクター
筋萎縮性側索硬化症 (ALS) 患者
2010年11月に難病診断を受け、現在は自宅から仕事を続けている。
難病ALSの認知を高めるため、自らの体験を自らの言葉でシェアしていきたい。

Hiro Fujita
Planning Director at McCann Erickson
ALS Patient (a.k.a. Lou Gehrig’s disease)
I am not a creator or an entertainer that people may know. However, I do have a few things to share through my fight against ALS. This has been a devastating yet invaluable experience. I grew up as an expat’s child in Europe, U.S., and Japan; I was an all star athlete in soccer, football and track; I work with the most talented and caring group of professionals at the biggest advertising agency; I am surrounded by hundreds of loving family and friends; I drank and partied like a rock star; But I have never truly realized or appreciated what I had been blessed with until I encountered ALS. Every value I have had has changed. I hope I can share some of this with you and inspire any kind of action to eliminate similar injustices.  Let’s go.

http://end-als.com/

Facebook: http://www.facebook.com/people/Hiro-Fujita/826240262
Email: hirofujita.als@gmail.com

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I'm waiting... 待ってる、、、

November 18, 2014

I'm still probably at the very left after 4 yrs... I got no doctors working on recovering me...
I gotta stay positive... "Everything is impossible until its done."

4年たった今、まだ俺は多分一番左、、、回復に向けての治療はうけられない。
前向きにいなきゃね、、、「すべては無理。やるまでは。」


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ALSが治った、2人目、、、2ND ALS patient "cured"

November 15, 2014

1人目は数年前、米国エモリー大学でテッド・ハラダ氏が幹細胞を脊髄に注入して、歩けなかったのが今や愛犬と走り回ってる。
http://www.crainsdetroit.com/article/20130503/BLOG007/130509948/ted-harada-his-als-miracle-continues-to-amaze
http://www.ipscell.com/2014/08/interview-with-ted-harada-part-2-right-to-try-neuralstem-and-how-hes-doing/
2人目はイスライルの方が歩けずしゃべれず呼吸も危なかったのが今や階段も上れるように。これも幹細胞を脊髄に注入。
もう治る希望もない患者に特別に行う治験compassionate treatmentを4人うけた中の1人。
この結果を受けFDAが急ぎでアメリカでの治験を認め数箇所でPhase 2からはじめてる、、、
http://www.algemeiner.com/2014/09/02/as-ice-bucket-challenge-draws-attention-to-als-israeli-cure-gathers-pace/

決して完治する治療発見とは言えない。
しかし患者からしたら成功例、両方とも日本で報道されてない、、、
一回、百人以上のALSの研究者や先生方の前で講演した時Ted Haradaの話をしたらかなりの人がメモってた、、、驚いた、、、泣きそうだった、、、知らんの?、、、

けど、どうにか希望を探しなおした。すると今度はイスライル人の話。
確か、FDAが認めれたものであれば日本でも治験をPhase2から始めれるとか?
ならば日本でも厚労省と研究者様、FDAとBrainstormと協力して治験を始めませんか?

1st person, Ted Harada, by injecting stem cells into his spinal cord at Emory University a few years ago.
He went from wheelchair to running around with his dog.
http://www.crainsdetroit.com/article/20130503/BLOG007/130509948/ted-harada-his-als-miracle-continues-to-amaze
http://www.ipscell.com/2014/08/interview-with-ted-harada-part-2-right-to-try-neuralstem-and-how-hes-doing/

Now, a Rabbi from Jerusalem. He couldn't walk with limited ability to speak or breathe. Now, he's climbing stairs... this too was accomplished by injecting stem cells into the spinal cord.
Rabbi was allowed this trial by what's called "compassionate treatment," intended for patients with no hope for recovery from the disease. He was one out of four who were trialed.
The FDA has hurried approval for phase 2 testing. Several institutions are currently underway.
http://www.algemeiner.com/2014/09/02/as-ice-bucket-challenge-draws-attention-to-als-israeli-cure-gathers-pace/
We cannot say we found a "cure" but sure am getting close.
What's disappointing is, none of this is covered by general media in japan ...
Once, I had the opportunity to speak in front of over 100 doctors and researchers on ALS. When I gave Ted Harada as an example many of them were taking notes... I was shocked... wanted to cry... YOU don't know?

Kept hope alive, barely. Then, the Rabbi came through...
I believe japan has decided to approve if FDA approves?
If so, researchers and the Health, Labor and Welfare Ministry, shouldn't we collaborate with the FDA and BrainStorm as leaders of Stem Cell research?

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ian n ross on wave

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"more impressive than man walking on the moon". 月面着陸よりすごい

November 3, 2014

article 記事:
http://www.bbc.com/news/health-29645760

another miracle made possible from persistence.
A paralyzed man now walks from cell transplant to the spinal cord...

再生細胞が全身麻痺の体を治した。
ナイフで刺され脊髄損傷で2年間胸から下が麻痺してたが、再生力の高い鼻の細胞(OEC)を脊髄に注入し、今は歩けるようになった、、、奇跡だ。
どんどん出てきますね、、、いつ、、、日本で、、、ALSに、、、うおーーい、、、


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photo by ross


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