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藤田正裕

1979年東京生まれ。
マッキャンエリクソン、プランニングディレクター
筋萎縮性側索硬化症 (ALS) 患者
2010年11月に難病診断を受け、現在は自宅から仕事を続けている。
難病ALSの認知を高めるため、自らの体験を自らの言葉でシェアしていきたい。

Hiro Fujita
Planning Director at McCann Erickson
ALS Patient (a.k.a. Lou Gehrig’s disease)
I am not a creator or an entertainer that people may know. However, I do have a few things to share through my fight against ALS. This has been a devastating yet invaluable experience. I grew up as an expat’s child in Europe, U.S., and Japan; I was an all star athlete in soccer, football and track; I work with the most talented and caring group of professionals at the biggest advertising agency; I am surrounded by hundreds of loving family and friends; I drank and partied like a rock star; But I have never truly realized or appreciated what I had been blessed with until I encountered ALS. Every value I have had has changed. I hope I can share some of this with you and inspire any kind of action to eliminate similar injustices.  Let’s go.

http://end-als.com/

Facebook: http://www.facebook.com/people/Hiro-Fujita/826240262
Email: hirofujita.als@gmail.com

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ええねん

July 21, 2015

健康で、何でも笑う勇気さえあればええねん。

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Baymax love

July 10, 2015

Look Kaira! i have my Baymax looking over me too!
(thank you naomi n manks)
don't let daddy take yours away!

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still smilin ... まだ笑顔、、、

June 30, 2015

DON'T forget...
YOU chose this.
YOU chose to live and fight... right ?
YOU ready for any kind of beating right? Like you tough right?
YOU, who's confident to be crazier than the craziest minds yeah? Like you tough right?
YOU, can handle kinds of pain others can't imagine yeah? You tough ya?
YOU... my friend... are one ignorant little shit...
BUT YOU CHOSE THIS.
So even if your eyeballs are slowing down leading you to the eternal abyss DON'T complain.
DON'T feel too sorry for yourself.
And DON'T forget YOU can still smile,
YOU are NOT your body...
YOU are NOT your body...
YOU are NOT your body...
Chill Hiro ...
calm down

やばい、、、
眼球の動きが、、、
大きくグルグルするのが難しく遅く
もっとゆっくりな病気の進行だったら俺ももう少し余裕なこと言ってられるのにな。
ちくしょー、リアルになってきた。
大丈夫だよ、俺。
俺は俺の体じゃない
俺は俺の体じゃない
まだ笑顔、まだ笑顔。
大丈夫。
ちんこきゅう
落ち着け、、、


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18 years old ... half a lifetime ago

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