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藤田正裕

1979年東京生まれ。
マッキャンエリクソン、プランニングディレクター
筋萎縮性側索硬化症 (ALS) 患者
2010年11月に難病診断を受け、現在は自宅から仕事を続けている。
難病ALSの認知を高めるため、自らの体験を自らの言葉でシェアしていきたい。

Hiro Fujita
Planning Director at McCann Erickson
ALS Patient (a.k.a. Lou Gehrig’s disease)
I am not a creator or an entertainer that people may know. However, I do have a few things to share through my fight against ALS. This has been a devastating yet invaluable experience. I grew up as an expat’s child in Europe, U.S., and Japan; I was an all star athlete in soccer, football and track; I work with the most talented and caring group of professionals at the biggest advertising agency; I am surrounded by hundreds of loving family and friends; I drank and partied like a rock star; But I have never truly realized or appreciated what I had been blessed with until I encountered ALS. Every value I have had has changed. I hope I can share some of this with you and inspire any kind of action to eliminate similar injustices.  Let’s go.

http://end-als.com/

Facebook: http://www.facebook.com/people/Hiro-Fujita/826240262
Email: hirofujita.als@gmail.com

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look at my hole 見て、穴がでかーい。

March 23, 2015

every 2 weeks, doc comes to change my tracheotomy tube thingy in my throat.
don't let my non-expressive facials fool you.
although doc is quick and good, it's pretty painful.
just another day... can't believe it's been 2 years already since i got this collar ...

2週間に1度、気管切開の喉に入ってる部分、カニューレを交換している。
顔は無表情になってしまったが誤解がないように。
先生は早いしうまいけど、か・な・り痛い。
「ALSとのある日」、、、この首輪をつけられてもう2年が過ぎた、、、


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うつ depressed

March 20, 2015

医者にこれ以上安定剤を飲むとしたらうつ病の薬になると言われた。
俺?うつなわけねーだろ、、、うつかな?
ま、今やどーでもいいや。
ね。ははは。

i was told by doc if i am to take more anxiety pills he'll have to put me on antidepressants...
wha? me? depressed? hell no... am i depressed?
oh well, what difference does it make now.
ya? haha


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picture by masako

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Runnin' to END ALS from NYC

March 8, 2015

jen is running again to END ALS!
what's beautiful is, she never tells me or makes a big deal about it, she just does it.
i've never ran more than 5K for a cause ... i did it once ... for work ... hungover... pathetic
thank you jen. for teaching me how to care.

ジェンがまたALSを終わらせるため走ってくれる。
すばらしいのが彼女は一度も自分に言わないしおおごとにしない。とにかくやる。
自分は何かのために5キロ以上走ったことがない。しかも1回しかしてない。しかも仕事のため。しかもかなりの二日酔いのまま。最低だ。
ジェン、「助ける」という姿勢をいつも教えてくれてありがとう。

http://www.endalsnyc2.myevent.com/


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